As it worsens, the condition eventually leaves victims as “human statues” who are unable to walk or talk as the disease locks their bodies into rigid positions.
WASHINGTON — Singer Celine Dion has been diagnosed with an incurable neurological disease, she announced on social media Thursday.
In a five minute video Posted on Dion’s Facebook page and Instagram, he addressed fans directly, apologizing for keeping quiet about the condition.
“As you know, I’ve always been an open book. I wasn’t ready to say anything before, but now I’m ready,” she said at the beginning of the video.
Dion, 54, said he had been diagnosed with “tough person syndrome”, a condition that affects one in a million. The syndrome is estimated to affect fewer than 5,000 people in the United States.
“While we’re still learning about this rare condition, we now know it’s what’s causing all the spasms I’m having,” Singer said.
According to the National Institute of Neurological Disorders and Stroke, This condition is characterized by muscles that tense uncontrollably.and increased sensitivity to stimuli such as noise, touch, and emotional distress, which can inhibit muscle contractions.
Because people with this disease cannot control their body effectively, they are more prone to falls and injuries because they cannot move to catch themselves.
As it worsens, the condition eventually leaves victims as “human statues” who are unable to walk or talk as the disease locks their bodies into rigid positions for hours at a time.
“Unfortunately these spasms affect every aspect of my daily life,” Dion said. “Sometimes I have trouble walking and it doesn’t allow me to use my vocal chords the way I sing.”
Because of this, Dion said she would not be able to continue her previously planned European tour, which was set to begin in February 2023.
Although there is no cure for stiff person syndrome, it can be managed with muscle relaxants, anticonvulsants, and other medications.
According to the NINDS website, “with appropriate treatment, symptoms are usually well controlled.”
Dion said she is undergoing medical treatment to slow the progression of the disease.
Dion is known as the ‘Queen of Las Vegas’ because of its hugely successful residences. His run in Las Vegas lasted 16 years and over 1,000 shows. But last year, he had to cancel a return residency at the new Resorts World on the Strip due to health issues, which have now been revealed to be severe person syndrome.
He also canceled the North American dates of his “Coverage” tour scheduled for March and April.
Check out Devon’s full video posted here: